Helpful Links


GBS/CIDP Foundation International
The GBS/CIDP Foundation International is the only voluntary, nonprofit organization that provides support to patients of GBS/CIDP and their families, awards grants to researchers and offers education to the public and professional communities.

The Pacific Chapter of The Neuropathy Association (PCNA)
The Pacific Chapter Of The Neuropathy Association (PCNA) is a California non-profit, tax-exempt corporation, which promotes the organization of local support groups for people with Peripheral Neuropathy (PN) and those who care for them. Our primary goal is to establish support groups in every population center in Northern California and Nevada.

Neuropathy Support Network
The Network for Neuropathy Support, Inc., dba Neuropathy Support Network is a Florida based 501(c)(3) nonprofit organization dedicated to actively supporting patients, care givers and families affected by ALL forms of Peripheral Neuropathy.  The founding director is Eugene B. Richardson BA, MDiv, EdM, MS (Counseling Psychology), LtCol, USA (Retired).  The Network supports the implementation of the missions of all organizations reaching out to raise awareness and hope to all neuropathy patients.  The Network holds the copyright to the DVD production of “Coping with Chronic Neuropathy” that was developed by professional volunteers, seven with neuropathy, to encourage and empower neuropathy patients world-wide.

The Foundation for Peripheral Neuropathy
The Foundation for Peripheral Neuropathy is a private foundation committed to fostering collaboration among today’s most gifted neuroscientists and physicians who are dedicated to neuropathy research and treatment to develop new and effective therapies that can reverse, reduce and on day find a cure for Peripheral Neuropathy. It is our ultimate goal to utilize every means and opportunities to dramatically improve the lives of those living with this debilitating disease.

National Institute of Neurological Disorders and Stroke
The mission of NINDS is to reduce the burden of neurological disease - a burden borne by every age group, by every segment of society, by people all over the world.

The UCSF Neuropathy Center
Coordinates education, support and outreach programs for patients suffering from peripheral neuropathy, a disease caused by damage to the peripheral nerves.

The National Institutes of Health (NIH)
Part of the U.S. Department of Health and Human Services, is the primary Federal agency for conducting and supporting medical research. Helping to lead the way toward important medical discoveries that improve people’s health and save lives, NIH investigates ways to prevent disease as well as the causes, treatments, and even cures for common and rare diseases.
Provides regularly updated information about federally and privately supported clinical research in human volunteers. gives you information about a trial's purpose, who may participate, locations, and phone numbers for more details. The information provided on should be used in conjunction with advice from health care professionals.

The National Organization for Rare Disorders (NORD)
NORD is a 501(c)3 organization, is a unique federation of voluntary health organizations dedicated to helping people with rare "orphan" diseases and assisting the organizations that serve them. NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service.

American Chronic Pain Association (ACPA)
The ACPA was founded in 1980 to provide resources for people coping with chronic pain.

The National Committee for Quality Assurance (NCQA)
The NCQA provides free access to detailed report cards on health plans, clinical performance, member satisfaction, access to care and overall quality on its Health Plan Report Cards online.

Power of Pain Foundation (POPF) 
The Power of Pain Foundation’s mission is to educate and show support for Chronic Pain Patients, specifically those with Neuropathy Pain conditions including diabetic neuropathy, lyme disease, neuro-muscular diseases, neuro-autoimmune diseases, and post cancer pain.

Patient Advocate Foundation (PAF)
The PAF seeks to assure patient access to care, maintenance of employment and financial stability.

Patient Services Incorporated (PSI)
The nonprofit PSI specializes in health insurance premium, pharmacy co-payment and co-payment waiver assistance for people with chronic illnesses.