Patient Resources

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News/Downloads

2008 Neuropathy Action Awareness Day

California Declares June 26th "Neuropathy Action Awareness Day"

Davis Enterprise Online Article: "Activists Provide A Voice"

Neurology Now Article: "Taking Action for Neuropathy"

I.G. Living Article: "Neuropathy Patient Champions Justice for All"

Media Alert: AZ Hearing on IVIG Access

Press Release: NAF Urges Congressional Action for IVIG

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Problems Obtaining IVIG?

ARE YOU EXPERIENCING PROBLEMS OBTAINING IVIG?

If you or your physician, are having trouble obtaining IVIG, the FDA needs to hear from you as soon as possible. Please call (800) 835-4709 or email your story to www.CBERProductShortages@cber.fda.gov.

Other Important resources include:

  • IDF website for IVIG manufacturer’s emergency supply phone numbers – www.primaryimmune.org.
  • Advisory Committee on Blood Safety and Availability
  • Web posting - www.hhs.gov/bloodsafety
  • Report denial of treatment, delay of treatment, forced reduction in dosage, etc.

If you are a Medicare recipient contact (800) MEDICARE and your Medicare Regional Office by going to www.cms.hhs.gov/about/regions/professionals.asp.